Let’s help this bunny out! This fam could use some help. See below
••• LINK IN MY BIO ••• #Repost @queen_webb ・・・
Some know my situation and the disease (SCID) we are fighting that my son Roman has. I have created a go fund me to help with things that have come up and things that will be needed before his homecoming. Link in my bio.This is the last stretch for our family, Roman has received his treatment of Gene Therapy, they harvested his cells and corrected the gene that was mutated and reinsert it back in him, it will be a daily fight for him to keep healthy until his cells can start growing. His immune system is already not there but with his chemo treatment other cells are even more suppressed and it is a very critical time to just maintain his health. We pray that the trial and this study he has become apart of will be ground breaking and help future babies with SCID. There is not enough awareness about this disease, currently not ever state is offering newborn screening which is critical to saving a babies life with this disease. We are all blessed that California just recently over the last 8 years started screening newborns. The earlier you can detect it the faster to be put in isolation and treated. Before this screening was offered, it was too late for some childern they got sick within a year or two of being home and not knowing they had this disease and could not fight it off. The researcher/scientist/Dr that created the newborn screening is actually in charge of the study that Roman is on and has dedicated years of research to this disease. She has saved so many life’s with this one test. Thank you to all the family and friends that have been there for us over the months and have keep our family in there prayers.
Brendan Schaub Photo via Instagram – 2018-03-15 21:10:59 – MMA Fighter community post from around the web